Tuesday, May 31, 2011

Ohio and haircuts

In case you haven't heard yet, Mike got accepted to grad school at Ohio State University for the fall. He's getting his masters in healthcare management. Mike is a smarty pants and got the top scholarship! Way to go Mike! We were going to move in September but...

...we decided to just pick up and go to Ohio NOW so that we could get started on therapies for Colton. So, in 2 1/2 weeks we will be in Ohio. Crazy! I'm scared, sad, hopeful and excited. Hopefully within a few weeks of living in Ohio we will be settling into our new routine of:

-2 hours of week of Occupational therapy
-2 hours of week of Speech Therapy
-2 hours a week of Physical Therapy
-25-35 hours a week (5 to 7 hours a day in our home) of ABA (Behavioral Therapy)

I'm ready to get going!

And on another note. I gave Colton a haircut tonight. I was NOT okay with his mullet, and wanted him to look nice and put together for all the new people in Ohio we are going to meet. Haircuts are near impossible with Colton, but I was happy with the outcome. I love my handsome boy!

Thursday, May 19, 2011

Needed Message

Maybe I'll just keep playing this over and over to ingrain these words in my heart. I know they are true. Sometimes I just have a hard time remembering them right now.

"Don't you quit. You keep walking. You keep trying. There is help, and happiness ahead. Some blessings come soon. Some come late. And some don't come till heaven. But for those who embrace the Gospel of Jesus Christ, they come. It will be alright in the end. Trust God, and believe in good things to come."

-Jeffrey R. Holland, Apostle of Jesus Christ

Quick Update

Well, it's been a week and a half since finding out that Colton has Autism. The overwhelming devastation and grief at first, transferred to then anger and sadness, then disappointment and acceptance, then hope and then I cycle all back through it again on a daily basis.

My mind has been working non stop. NON stop. I'm constantly on the phone calling people, setting up appointments, reading, and trying to figure out our future with what was already tricky with a move to Columbus for Mike to go to grad school and getting rid of our house. Throw this on top of it and life pretty much doesn't stop or my mind.

Autism is tricky because there are a million different opinions of why, therapies to use, and results shown. And every kid in the autism spectrum is entirely different. Kids do anything ranging from a few hours a week of therapy to 40 plus hours. 4o hours? You think I'm joking, I'm not...and we very likely could go that route.

No pressure Ang, it's only your child's entire future on your head. and EVERY decision I made directly impacts his future. If I don't teach him or get someone to HELP teach him things, he will NOT learn them. These things are simple things that most kids pick up...things like, looking at someone when they talk to you, paying attention to what people are doing around you rather than the grass, giving hugs to those you love. All moms need hugs and kisses and smiles. I'm parenting a difficult child withOUT any of those positive reinforcements.

I'm sure there are books out there, but pretty much my book would be titled "Being the mom of an autistic child: the hardest and loneliest job.

If only I could get some hugs from him, it'd keep me going stronger...but I'll just have to settle for me hugging him and having him push off. Sigh.

Sorry for the negative post, maybe I'll post one later today when I'm feeling more hopeful...since I'm always cycling like that.

(oh and Colton has regained some of his language, but mostly still doesn't talk and I can't understand him. At least it's better than last week where we had nothing. This is coming from a kid who was completely talking in sentences a couple months ago).

Wednesday, May 11, 2011

Prayers Please

I'm in a nightmare that keeps getting worse... My dear Colton has significantly regressed within the past few weeks and now is not able to speak/show social interaction almost whatsoever, and just hops and runs everywhere. He's 2, and 3 weeks ago was talking in sentences, running around like buzz, and giving me hugs like a normal 2 year old. Most likely regressive Autism/Sensory Integrative Disorder.

I feel like I can't breathe and am broken. This is going to be a long road. Prayers would be appreciated.